Friday, May 23, 2014

Status at 27 months of Ibrutinib

I visited the National Institutes of Health (NIH) again on May 12. This visit differed from previous ones in that I had an MRI of my lower back region to see if anything could be seen that might be causing the neuropathy in my feet. It showed nothing that could be at fault. So, cross that possible cause off the list.
As for the CLL, itself, blood test scores continue to look good---still improving---except for those that pertain to the immune system.  Red blood cell indicators, such as hematocrit and hemoglobin, are now officially in the normal range.  White blood cell numbers are again inching downward toward the normal range, although they still have a way to go. But that IGg (immunoglobulin) number is still looking pathetic. I guess it is something I'll have to learn to live with, and see if there are some nutritional boosts I can find.
When I think back to the state of my health in late January 2012 (so weak I had to be wheeled across the airport to get to NIH), a bit of discomfort from neuropathy in my feet, which might have nothing whatever to do with Ibrutinib, is nothing.  Heck, Nancy and I bicycled about 30 miles a day across southern Holland in early May.
Nothing to do but keep on keeping on---gratefully.